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they or their loved one
with a disability are eligible for benefits that could
contribute to their quality of life. In order to
maintain eligibility they may need to have a
Special Needs Trust or Supplemental Needs Trust
in place to receive any asset owned by the
person with a disability, or to receive income
that may be gifted through life insurance,
structured settlements or outright gifts.
Parents of a minor child with a disability may
find it is imperative to appoint a guardian to
provide care in the event of their own death or
disability. Further, a smooth transition into
the care of a guardian is best served by
developing a comprehensive plan that carries out
the intentions of the parents for their child
with a disability: A “Summary of Our Wishes.”
As children with
special needs reach the age of 18, questions
arise related to their choices and options for
life beyond high
school. Financial
and Healthcare Powers of Attorney must be
established for any person turning 18. These
documents will provide for their welfare in the
event of medical emergencies or loss of decision
making ability. At this age, the extent of their
capacity may be explored; are they able to act
independently or does a guardian need to be
appointed? Should they take advantage of an
education system that may allow them to remain
in high school until the age of 21, or should
they graduate with their peers? Will the
emerging young adult be able to work in a
sheltered, customized, or competitive employment
setting? How will working affect their
eligibility for benefits such as Social
Security Income (SSI), Social Security
Disability Insurance (SSDI) and Medical Assistance
insurance? How would not working affect their
sense of self or contribute to a life of
possibilities? As a person ages out of the
children’s service and support system, what and
who will replace the needed benefits in the
adult system of care?
Frequently
children with a disability require supports in both
pre-school and school age programs to ensure that
services are delivered in a least restrictive
environment, and with regard to the particular abilities
of the child in mind. While self-determination may be
the punctuation to goals in the Individualized Education
Plan (IEP), achieving this is often the result of
frequent and sometimes complicated negotiations, where
the best outcomes require knowledge of laws pertaining
to special education services.
Special Needs Planning at
Steinbacher, Sholder & Stahl provides an opportunity for
creative discussion and legal products that help the
transitioning adult and their family access waiver and
entitlement programs, plan for housing and community
services, and establish powers of attorney or
guardianships allowing maximum flexibility and
eligibility. The personal goals of the individual with a
disability, observations of the family, and the guidance
offered by astute legal planning, are able to join to
create a seamless transition into a world of possibility
and increased opportunity.
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